If you love someone with fibromyalgia who suffers from intense pain that varies from one day to another and from one hour to another. We can not predict it. Then we want to understand that things sometimes get canceled at the last minute and it bothers us as much as you do.
We want you to know that we even learn to accept our body with its limitations and it is not easy. There is no cure for fibromyalgia, but we try to relieve symptoms daily. We do not suffer for this.
Many times we feel overwhelmed and can not deal with more stress than we have. If possible, do not add more stress to my body.
While we look good, we do not feel good. We have learned to live with constant pain most of the time. When you see us happy, it does not necessarily mean that we do not have pain, we just face each other. Some people think that we can not be so bad if we are good. Pain is not. It is an “invisible” chronic disease and it is not easy for us to have it.
Understand, please, because we can not work as before, it’s not that we are lazy. Our fatigue and pain is unpredictable and, because of this, we need to make adjustments in our lifestyle. Something that seems simple and easy to do is not for us and can cause us much fatigue and pain. Not necessarily something we did yesterday that we can do today, but that does not mean we can not.
Sometimes we have depression. Who would not get depressed with a strong and constant pain? It has been found that depression occurs with the same frequency in fibromyalgia as in all other conditions of chronic pain. Do not give us pain or depress us, but pain depresses us and we can not do what we use. We also feel bad when doctors, family and friends do not give us support or understanding. Please, understand me, with your support and help to alleviate my pain.
While we sleep all night, we do not sleep enough. People with fibromyalgia have a poor quality of sleep, which makes things worse when days sleep poorly.
For us it is not easy to stay in a long position (even seats). This causes us much pain and it takes us time to recover. Why not let some activities that we know about this factor hurt us. Sometimes we will do it even if we know the consequences it will bring.
We do not care if we sometimes forget the simple things, what we say, someone’s name or the wrong word. These are cognitive problems that are part of fibromyalgia, especially on days when we have a lot of pain. It is something strange for you and me. But we laugh together and it helps us maintain our sense of humor.
Most people with fibromyalgia are more familiar with this condition than some doctors and others who have been forced to educate us to understand our bodies. So, please, if you offer me a “cure”, I will not. Not because I do not understand your help or I do not improve, but because I like to know and try many things.
We are very happy when we have an appointment with little or no pain when we sleep, when we do something that we have not achieved long ago when we understand it.
We appreciate everything you have done and can do for me; Including efforts to inform and understand. Little things mean a lot to me, and I need you to help me. Be careful and patient. Remember that in this tired body it still hurts and I still am. I am learning to live every day with my new limits and to maintain the hope of tomorrow. Help me laugh and see the wonderful things that God gives us.