Living with fibromyalgia is extremely difficult, as millions of patients around the world can confirm. The fact that physical and emotional pain is not visible to others can often make it even more difficult. Fibromyalgia is known as an “invisible disease” because painful and often debilitating side effects are often not visible to others.
A person with fibromyalgia may look good in the open air, but suffers from excruciating pain on the inside. Understanding this fact is important for people who want to support a friend or relative of someone with fibromyalgia.
Although it is often difficult to find words to support and hope for those suffering from fibromyalgia, here is a list of 5 things that certainly do not mean that someone has fibromyalgia. We do not think we can say anything better than one of these 5 things.
# 1 “You do not look sick”
This comment shows a complete lack of understanding of invisible diseases. Not all serious diseases are accompanied by obvious symptoms, such as sitting in a wheelchair. People with fibromyalgia have often learned coping mechanisms and can use their limited energy every day to try to be more normal for others. But the pain is still there. And even referring to a person with fibromyalgia, they claim that they can compromise.
# 2 “It should be nice not to have to work”
No, no … it is not. The vast majority of those suffering from fibromyalgia would do everything to regain their independence and ability to work full-time.
The suggestion that it was not possible to work was a choice or that they were just lazy, incredibly insulting.
# 3 “I’ve heard that fibromyalgia is not a real disease”
You have already heard the evil. The cause of fibromyalgia is still being studied and the many studies are based on other health problems due to a lack of historical insight. But that does not mean that it is less real for nearly 6 million people with fibromyalgia in the United States.
Fibromyalgia was officially recognized as a real disease in the United States last year when it received its own diagnostic code and has been recognized for many years by the social services of the FDA and the National Security Administration.
# 4 “You just have to exercise more and be more active”
If it was that simple In fact, many patients with fibromyalgia are pushing the limits of their physical capabilities by getting up and taking a shower every day.
Many find relief in yoga or other light aerobic exercises. But often the kind of effort associated with training is not an option.
# 5 “Everything is in your head”
We have saved the worst last. No, not everything is in my head. Pain and fatigue are present throughout the body, and sometimes I feel that even my hair hurts! Yes, it is so bad and the fact that you can not see my pain does not mean that it is not a physical condition. Stress, anxiety and depression can aggravate all symptoms of chronic pain, but do not cause pain.
If you are here, it is likely that you have fibromyalgia or that someone really wants to understand fibromyalgia to support someone they love. Soft pliers for you if you are the first and grateful if you are the last.