You started to feel pain and fatigue more than before, you’re not sure what’s happening, but it hurts and you’re tired. You can keep a job, you can get over your day, but you know something is not right … so it’s something you’re going to start investigating.
You have a lot of pain, sometimes you take an anti-inflammatory medicine or whatever. He does not get much relief, and he has accepted the fact that this is something he will have for a while. You feel a lot of pain and you are exhausted almost every day, but most of you go ahead and keep a job, you can go to events, spend time with your friends and loved ones, and have a good time here and there.
You are in constant pain, you are constantly tired, you wonder if you can ever function normally again. He is considering not working, because he no longer has the energy he once had, he comes home from work and all he can do is rest. You have to reject invitations, you do not have any energy and you have to rest only to return tomorrow. At this stage, you begin to feel more alone and more and more people begin to think that you moan too much. This stage can last a long time, maybe years.
You are in constant pain all the time, good days are few and far between. You are calling sick work more than you earn. You are in bed a good part of your day. When you have a good day, you take advantage of it and do everything you can, everything that you have left in the last weeks takes you to your day, knowing that tomorrow you will pay for it. Your flares last for days. At this moment your friends make plans without you, they already know your excuses and are almost sure that you will not be able to participate. Your family begins to think that you are using fibromyalgia as an excuse to not do things, because stages 1-3 you could do much of what you can not do now. They think that you are using your illness as an excuse, you feel lonely, isolated, worried, emotional, sad. This stage can last for years.
He has already been dismissed or has given up his job, is asking questions about permanent disability and how long it takes to get it. You have heard horror stories about people who were denied and the process takes years. You are struggling to make ends meet. Maybe I have a person to take care of you. You spend most of the day in bed, although you still take advantage of that good day from time to time. You are sore, very sore, you cry a lot, you feel imprisoned in your own body. By then, you have already explained to your friends that it still makes you feel good to be invited even if you do not go. You have discovered that the only people who can relate to you are in a similar situation. You want your friends and family to understand.
You may or may not be waiting for the disability pension. You can not keep a job. Fibromyalgia is now your lifestyle, most of your friends live with fibromyalgia, everything you do takes all your precious energy, simple daily tasks that you took for granted in previous stages, go to the bathroom, wash your hair, take a shower , receive a dress, tie your shoes, take everything you can give. You get irritated with your hair or clothes touching your skin, you have no energy or desire to put on “your face” before leaving, you do not have the energy to maintain an orderly home. With all the medications you are taking or have tried, you are dealing with side effects and constant pain.
You are a human and you still enjoy some things, like watching television. Try to keep up with the news about fibromyalgia, hoping you are closer to finding a cure. Most of your old friends are gone, they have things to do. You need to rest a lot. It is easy to feel overwhelmed at this stage, because things pile up around you: bills, laundry, dishes. You do a little every day, you make an effort so that you do not feel that your day was wasted in bed, you feel guilty of not being able to support your own weight in the house. Your children, spouse or family members do things for you more than ever. They try to do it in a nice way, but you still feel that it is a burden, you can not remember anything, you can not remember names or dates and you lose your thread of thought in the middle of the sentence. He also knows more about fibromyalgia at this stage than his own doctor and basically laughs when he tries a new medication. You are hopeless, the same exercise as before, the same results, nothing helps much.
Stage 7 (the final stage)
Anger and rejection
It is something like most of us. We do not believe that I will surrender to this horror, and we will continue to look for answers for reasons. everything you can do I refuse to believe that this horror of an illness simply happens.